Fig. 1

Participant disposition. ‘Active CH patients’ (n = 155), meaning active episodic CH and chronic CH patients, were included in the analysis of reliability and validity. After 16.1 ± 3.2 days patients participated a second survey to evaluate test-retest reliability. Participants with active CH at both surveys and a change in attack frequency ≤ 2 attacks per week were included in the analysis of test-retest reliability. Abbreviations: CH, cluster headache; cCH, chronic cluster headache; eCH, episodic cluster headache